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December 2008 Archives

December 2, 2008

Spam!

First off, I want to apologize to everyone who now has to "log in" or "register" in order to comment, but I'm afraid it's necessary. I've been getting so much spam it's ridiculous and Ian says that this is the easiest way to make it stop. Thanks for your patience.

That pain is back again ... the one I recognize from before my gall bladder surgery. It's a pain I get under my ribs on my right side after I eat that radiates to my shoulder. We are "watching it" for now, but it scares me ... I don't want any more bumps in the road. I'm really sick of being afraid and worried. I know (logically) that there's no point, but sometimes I can't make it stop. Sometimes I see my life as one big string of health complications. I've been coming across a lot of stories/books about other people's cancer experiences. They are all valid, but I can't help thinking that there are few that have fought the six-years war (although my friend, Laura, has just rounded ten ... she rocks!). I am so done. I am so done. I am so done.

I went to clinic today ... My regular nurse practitioner is on vacation and I miss her dearly (she'll be back next week). In the meantime, I'm seeing this other guy -- who is just fine -- but doesn't really know me. Everything looks pretty good, though ... blood counts holding, weight holding and, in general, my only complaints are that darn pain after I eat, my teeth getting brain freeze every time I bite into something cold (dentist says I am grinding my teeth ... ah, steroids) and the fact that I'm still burning the midnight oil (ah, the steroids ...). And, keeping to the awesome consistency I've been hearing about "how I'm doing" and "what comes next," this other guy says that they will probably start cutting back my steroids in two weeks (My regular NP told me after Christmas). ???

Which reminds me: I keep all my pills in a pill case that divides meds by day (M,T,W) and time of day (morning, afternoon, evening). Last week, I forgot to include my steroids. After two or three days, I started to feel pretty sick and I figured it out. Once I started taking the steroids again, I felt almost immediately better. The reason I bring this up is that it pretty much demonstrates how much I rely on them to feel good.

By now, you can probably understand why I haven't written in awhile. I am feeling a little down and hate to sound like a whiner. My therapist calls it an "existential crisis."

The good news is that, with the steroids, I feel really good. Yesterday, I walked up Westward Drive (very steep) with a bag of groceries and wasn't really winded. My hair is still growing and my scars are fading. My right arm finally stopped hurting from that infiltrated IV I got at the hospital. Also, I fought off a cold over Thanksgiving Day weekend, which means I have some kind of immune system out there ... somewhere.

That's all for now ... 

much love,
Katie
 
P.S. Sorry there's no new picture today, but I will share a cute Zach moment instead: After Zach is done eating dinner and he wants to get lifted out of his seat, he asks for the G-Paw or Daddy crane. The crane is sometimes very broken and makes a lot of abrupt stops and starts, so every time he asks, he straightens up and says boldly, "I am willing to take the risk."




December 7, 2008

A day in the life


"I'm not miserable, I'm cold. There's a difference."
-katie


Today was pretty amazing for our hero.  We started off driving up to Petaluma to cut down a Christmas tree.  Katie was a trooper through the whole thing, though a bit cold as you can see from the photo.  After a quick stop at the farmer's market, we went home where everyone took a nap.  In the afternoon Katie went out shopping with Marlene and spent a good deal of time kickin it with Zach.  We rounded the day out putting lights on the tree.  It was a glorious thing to see Katie joining in on the entire day's events!
-ian


P.s. I'm continuing to muck with the comments to try and find a way for everyone to post with ease and still keep the spammers out.  Bear with me.

December 15, 2008

Watch your step ...


Zach shaving intently.

The other day, Ian and I visited a perspective preschool. The tour went a little over time, so I felt very anxious to get to clinic. I was so late already. Then, as we crossed Dolores Street to get to our car, I saw a truck coming, probaly a block away. Wanting to get across the street, I started to jog -- or least that was my intention. Instead, my body pitched forward and my legs pretty much stayed where the were. I went down in a kind of slow motion -- cup of coffee sailing, my papers falling out of my bag and scattering. All I could think of was that big truck and that he could hit me and I could die. I remeber thinking "Isn't that ironic. My cancer's not going to kill me. I'm going to get run over by a truck instead). But there were no screeching tires. In fact, the driver had stopped in the other lane to ask if I was OK. I told him I was fine -- I was, basically -- but I got in the car and cried a little. Have you ever truly fallen as an adult? It makes you feel so weird, so vulnerable, so embarrassed.

I had minor road rash on the palms of my hands and right elbow, but my left knee was a mess. The road had torn a hole in my jeans and I saw an open wound about the size of a quarter. It hurt. Luckily, we on our way to clinic. They cleaned the wound and bandaged it up for me. I am still have to change my mega-bandage every day.

My knee is going to take awhile to heal properly. Sometimes I forget and get down on the floor with Zach or crawl into bed at night. Whenever I put pressure on it, it hurts so bad that I let out this surprised gas/pain noise. Then I start to use unsavory language (only if Zach's not around) and, I don't care what anyone says, cursing your head off really makes you feel better.

This experience of falling reminded me so much of a similar fall I had when I was in the 4th grade. We were still living in small town Ohio and I had a best friend that lived in the house directly behind me. Her name is Jill. We used to walk home from school together every day. This day, however, we're walking along and I trip on the sidewalk. I am so surprised that I'm not able to catch myself and I fall, ending up with a bleeding knee. I tried to play it cool, but it hurt and it was bleeding. Jill stooped down at my side looking very concerned. "Let me wipe it with this," she said. She was referring to her brand new, totally awesome pink and blue roller-skating jacket. It was shiny, satin and slick. I loved it --she loved it, yet she was willing press it on my bleeding knee. I protested. I coveted that coat and just couldn't let her do it. In the end, I can't remember if she used her coat or not, but the memory of the gesture remains. It's one of the kindest things anyone's ever done for me.

Since the accident, I've been walking more carefully these days. I may be feeling good, but that's exactly why sometimes I forget that I'm not healed. When I got to the clinic and told my story, my nurse practitioner said that the steroids can make you clumsy, weak and unbalanced (oh, so that's why I keep bumping into walls!). But she also suggested that we should start weaning me from the steroids after Christmas. Since I'm feeling so well (except for the beat up knee), I don't want to get sick over the holidays. Why rock the boat?

I am, however, looking forward to getting off some of these medications. I hope reducing the steroids will be a success ... Then maybe I'll be able to sleep like a normal person.

Take care this week and try not to get trampled by aggressive shoppers ...

Much love,
Katie

December 21, 2008

Chronical of Food


The demise following our fabulous lobster feast.


The holidays bring about all kinds of presents, but this one takes the cake. A friend of Ron's from Maine sent us a Maine lobster dinner. It was awesome. We had clam chowder (Zach's favorite), shrimp cocktail and plenty of lobster. We had to invite a couple of friends over just to polish it off. It turned into one of those beautiful, spontaneous evenings that you can't possibly plan -- replete with plastic lobster bibs and "How to Eat a Lobster" paper place mats (which were awfully helpfu, by the way). Thank you, Greg!

I've also got a couple of great food items from others around the country ... It's always great to try what you can't get at home, right? From my mom, I got a series of bbq sauce and salsas -- it came in a box shaped like Oklahoma. My dad's cousin, Eva, sent us toffee and the best cookie bark I've ever had. It's good to see you're all doing your part to try and keep my weight up, but with the holidays approaching, I seem to be having no problem. Especially since Corte Madera, and the street Ron and Marlene live on, have actual neighbors. They really do show up with cookies, biscotti and banana bread. Yum.

On the "How I'm doing" front, I had a pretty non-eventful clinic visit on Tuesday. Besides the sensitive teeth (which is getting better again) and the sleep deprivation (also getting better -- had two sleep-aid-free nights), I feel pretty good. My nurse practitioner still thinks we will start tapering the steroids after Christmas. My blood counts are "good," not "great" like I've heard in the past, but no one's worried yet. My platelet count has taken a dive during my last two visits -- I don't like that, but still it's not something to worry about. Or, more to the point, there's nothing I can do about it.

Continuing Operation World Freedom, I went shopping with Marlene -- at a mall, of all places. We have a tradition that, for my birthday, we go shopping and I pick out a present, then she takes me to lunch. We got to the mall in Corte Madera first thing and it was a good call. It was early and rainy and not many people were out.

Speaking of birthdays, it's Ian's birthday tomorrow and we're cooking up some steak. Yum. Yum.

I'll be thinking of all of you during the next week ... Hoping you're enjoying every moment, even when your Aunt Nannie pinches you cheek (even though you're 30-something) or your brother swipes the last piece of pie or when you're stuck in a conversation you just can't seem to get out of ... People are just who they are is all. Happy Holidays!

much love,
Katie

December 25, 2008

Christmas Eve

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It's Christmas Eve ... or really the wee hours of Christmas Morning. There's a howling rainstorm going on outside ... Just the kind I like when I am inside. I just finished sewing a patch on the jeans I was wearing when I fell a couple of weeks ago ... I am thankful for that because that means my hands aren't shaking very much. I even wrote the Santa note we left by the milk and cookies -- and it's legible. I am getting stronger and better.

I'll tell you a secret: I've always loved Christmas Eve best. It means Christmas is still to come, lots of it left to anticipate. Even as a little girl, I didn't want to go to sleep on Christmas Eve ... I'd lay there and savor the moment, listening to the sounds outside, wondering if Santa had been here or not.

Now, I may not believe in Santa, but I still hold onto that magic feeling Christmas Eve gives me. I've been telling Zach that Christmas is about love and being with people you love ... (and food). I want him to remember that it's not about the presents.

I'm getting ready to go to sleep now and the wind and rain have stopped. Everything is quiet and I'm thinking of all the people I love. That's all of you and then some. I imagine you tucked up wherever you are, wrapped up in a thick robe of your own Christmas magic.

Good night and Merry Christmas,
Katie

About December 2008

This page contains all entries posted to Katie's BMT Updates in December 2008. They are listed from oldest to newest.

November 2008 is the previous archive.

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